Vote for candidates that will increase NCI funding
Pollsters are constantly asking voters which issues are most important to them; jobs, national defense or various social issues. I’m basically a one issue voter. I want to see the National Institutes...
View ArticleManaging chemotherapy side effects (Part Four)
Yesterday I promised to address the two most powerful weapons a myeloma patient have in his or her cognitive arsenals: counseling and psycho-therapeutic drugs. Listen. Good nutrition and supplements...
View ArticleReader emails always enlightening
I receive a half dozen emails about a topic for every one comment you see after I publish a blog post. I enjoy getting emails from readers. Often they’re uplifting, helping me power through another...
View ArticleImportant info for myeloma patients and caregivers
I’ve been accumulating a wide variety of helpful information since the start of the start of the new year. Not enough to post about one by one, but I didn’t want that to stop me from passing them...
View ArticleLLS announces travel assistance for myeloma patients
My old friend, myeloma survivor Richard Blustein, shared some great financial aid news with me earlier this week: Another benefit for blood cancer patients. No other organization helps cancer patients...
View ArticleReaching patients in need can be challenging
Wednesday I promised to “write about the challenges facing us as we try to get important, sometimes life saving information out to those that can use it most.” The quality of information shared at...
View ArticleAnother creative way to get the word out
There are lots of different ways to get the word out about multiple myeloma. Here’s a fun, silly one, courtesy my newly adopted, North Florida support group doing the mambo for myeloma: There wasn’t...
View ArticleAnswers about all things myeloma
Here’s a more conventional way to learn about multiple myeloma. I’ve recommended Andrew’s Schorr’s Patient Power website in the past, and I’ve been interviewed by Andrew and others on his team. A...
View ArticleI want more days to walk along the beach
Wednesday I drove back to Tampa to visit my old support group, and promote my Beach Party in March. A dozen or so members plan to party with us! As I closed my remarks, the group’s leader, Richard,...
View ArticleRegistration fees help offset travel expenses for patients in need
Thinking about coming to our beach party but worried about the cost? We may be able to help. Apparently there’s a rule for the way drug company sponsorship money is spent; money can’t be given...
View ArticleDr. Noopur Raje featured tonight on Cure Talks
I’ve been so busy I forgot to promote tonight’s Cure Talks broadcast, featuring featured Pat’s Myeloma Beach Party speaker, myeloma specialist Dr. Noopur Raje. Jenny Ahlstrom and Gary Anderson will be...
View ArticleFun ways to stay connected
Just in case you missed it, Wednesday’s Cure Talks broadcast was a lot of fun! It featured Pat’s Myeloma Beach Party speaker, Dr. Noopur Raje. Dr. Raje is both a researcher and clinician at...
View ArticleON WISCONSIN!
It was difficult to get anything done today; our Wisconsin Badgers are playing Duke tonight for the National Championship. As regular readers know, Pattie and I are University of Wisconsin grads....
View ArticleNext year’s Beach Party planning off to an early start
One of the amazing things about the final day of this year’s Beach Party: no one wanted to leave! Instead, the 70 or so remaining patients and caregivers stayed, shared suggestions and started to help...
View ArticleReader stories can help us make difficult therapy decisions
As most of you know, I’ve been facing the toughest therapy decision of my eight year multiple myeloma journey. But this week’s series of posts aren’t about me. They are a culmination of what I’ve...
View ArticleUpdate: Allo transplant recipient, David from Florida (Part Two)
So we’ve heard from both of our most recent Patient Snapshot allogeneic (donor) stem cell transplant recipients. As multiple myeloma goes, both are young, with kids and lovely, caring wives. Tom from...
View ArticleUpdate: Tom from Ohio
Like many of you, I’ve been worried about our dear friend, allogeneic stem cell transplant recipient, Tom from Ohio, ever since his wife, Whitney, shared that he was facing another setback and had been...
View ArticleMusical tribute to myeloma patients
Myeloma survivor and CrowdCare Foundation co-founder, Jenny Ahlstrom, is also an aspiring song writer. Jenny’s shy; she reluctantly performed for us last month at Pat’s Myeloma Beach Party. Great...
View ArticleTom Brokaw’s program about his multiple myeloma a pleasant surprise
I promised to give everyone an update about how I’m doing today. The antibiotics are working and I’m doing OK. But I’m guessing many of you watched Tom Brokaw’s one hour special about multiple...
View ArticleDecision time: modified auto, allo or drug roulette? (Part One)
I ended Saturday’s post this way: “I’ve had an epiphany. I like the sound of ‘in my future.’ This has been a game changing week for me, full of amazing coincidences, reaffirming phone calls–and...
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